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Discussion: Ovary troubles...
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 Tabby27 |
Ovary troubles...
Dec 8 2007, 3:14 PM EST Sorry if this gets long, I'm going to give a little history with it just to give you some idea of my situation I'm Tabitha - 21 and I've been having issues since 2006. It all started with a 6+cm on my right ovary. My ob at the time thought I would lose the ovary and tube. Luckily I didn't (Now I wish I would have, honestly). He laproscopically removed the cyst, removed a cyst from my left tube, and lasered my cervix (at the time I had high risk HPV with LGSIL- Low Grade Squamous Intraepitheial Lesion), and he also did a hysterosalpingogram as a courtesy (we didn't even know if I was capable of getting pregnant). After surgery (June 30, 06), I found out I was pregnant with my son on September 7, 06. After my delivery I was in pain, persistent nagging pelvic pain. I had an ultrasound, it almost looked as if there were calcifications in my uterus. I also had another large cyst on my right ovary. I was set up for another laproscopic surgery - D&C, and drainage of the cyst on my ovary. They also did a biopsy - came back negative. Although I keep having the cysts drained/removed they keep coming back - just as large, just as quick and often. They are persistent and nagging. I can tell the doctor I have one before being examined, and about how large they are by the way my body feels. My new OB is sending me to an oncologist just to rule somethings out, before looking into removing the right ovary, and also exploring my options since I'm so young. I don't know if anyone here has gone or is going through anything similar or has any advice for me? Any help would be greatly appreciated. Thank you! Do you find this valuable? |
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LisaRogariBurns LisaRogariBurns |
RE: Ovary troubles...
Feb 20 2008, 5:46 PM EST Happy to hear you have a son. Most of us usually end up spending countless dollars on infertility and then adoption. I have been where you are at 21 and am presently 37. Ibprofen is my best friend. You need to be very strong when in the doctors office. I have gone in gung ho and end up coming out doing scheduled for a new test I knew was fruitless. It sounds like you know all your terminology and can hold your own so make a decission about what you think your next step should be and go with it. I don't think removing your ovaries will stop the cysts from growing. They have a way of finding new locations, like your breasts and uterous. So research research research. You know your body better than any doctor and there are doctors who will treat your symptoms more aggressively than others so why you are at the research find the best doctor no matter how far away; doctors idealogy matters. Do you find this valuable? |
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Alaina49 Alaina49 |
RE: Ovary troubles...
Mar 15 2008, 8:54 AM EDT In my thirties, I started getting cysts on one ovary. It was every so often, then every six months, then every three months and finally by the age of 44, it was every month. The pain was unbelievable and it was still there even after the cyst was gone. We tried stopping my periods which stopped the ovulation but I had a terrible consequence to the hormones. So I was left with the only option and went with a hysteretomy and had them remove the uterus and the ovary that kept popping out the cysts. After doing hours of research, I decided to take the risk of keeping the other ovary and my cervix. It was a 50/50 shot from my research that the remaining ovary would or would not start doing the same thing. Two years later and I haven't had a cyst since. The doctor and pathologist did find that I had adenomyosis. In talking to other women all over the net, I have gotten the impression that chronic cysts is one of the symptoms of adenomyosis. I've never read a report or heard a doctor say that but I've had lots of women with adenomyosis tell me that. Adenomyosis sometimes shows up on an MRI but not always. Adenomyosis sometimes makes your uterus feel boggy but not always. Adenomyosis can make your uterus feel and look larger but not always. Unfortunately, sometimes the only way to tell if you have it is after the hysterectomy. I would still discuss it with your doctor. Also, have they talked to you about PCOS. And have they tried hormones just to stop you from ovulating altogether, for awhile, to give you a rest from the pain. Please let us know what the oncologist says and please research PCOS and adenomyosis. Hugz for your courage Alaina Do you find this valuable? |