Endometriosis is a reproductive and immunological disease affecting an estimated 89 million women and girls around the world. Although they may suffer significant symptoms ranging from pelvic pain to infertility, many do not know that they have endometriosis.

While this condition can cause painful periods, endometriosis is far more than just "killer cramps". Endometriosis is a common problem. It occurs in an estimated 10% of women during their reproductive years. The rate may be as high as 35% among infertile women. Although endometriosis is typically diagnosed between the ages of 25 and 35, the problem probably begins about the time that regular menstruation begins.

A woman who has a mother or sister with endometriosis has a 6 times greater risk of developing endometriosis than the general population. Other possible risk factors include starting menstruation at an early age, regular menstrual cycles, and long periods (lasting 7 or more days).

Adenomyosis, sometimes called internal endometriosis, is uterine thickening that occurs when endometrial tissue, which normally lines the uterus, moves into the outer muscular walls of the uterus. Like endometriosis, it can cause bleeding and cramping, sometimes severe. It usually affects women in the 30 to 50 year age range but can affect younger women. Diagnosis can sometimes be made with an MRI, however the only definite diagnosis comes from the pathology report after a hysterectomy.

If you have experience with endometriosis including diagnosis, treatment, surgical interventions, medication, alternative treatments or coping skills, please write about your experience and share with others. Become a writer and tell us your story or learn more about Endometriosis.

Endometriosis Research Center (ERC) presents: Endometriosis Screening & Education Kit developed in collaboration with The United States Department of Health & Human Services Office on Women's Health. Includes information such as:

Endometriosis Self-Test: Do You Have Endometriosis? Only Surgery can Diagnose the Disease, but this Test can Help You & Your Doctor

• Endometriosis: Answers to Frequently Asked Questions: Your Guide to Understanding the Enigmatic Disease

• Endometriosis Pain Journal: Monitor & Communicate Symptoms to Your Healthcare Provider

• Where to Get Help: About Our Education, Awareness, Support & Research Facilitation Programs

Download the kit in PDF format (379kb)

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